Fractured

Sophie had some swelling on the back of her hand two days ago and was having some pain when we touched it but otherwise seemed fine.  It was a tiny bit red but wasn't bruised so we kept an eye on it but were puzzled by it.  After school yesterday it was more puffy so I decided to take her to be seen by the doctor.  So we went straight to the urgent care centre that is a couple blocks away.  I was afraid that she had some kind of infection under the skin or something like that.  We were sent for x-rays and to my shock we found out that Sophie has a fractured wrist.  I was not expecting it to be that because there is no bruising and she hasn't been complaining other than when we touched her hand.  We have no idea how she broke it and unfortunately probably never will.  She is such a strong little girl and I hate that she got hurt and wasn't able to tell us and can't tell us how it happened or when it happened.  She hasn't had any crying or upset periods with us so we really don't know if it hurts when not being touched or not.

She has a cast which covers the fingers to the elbow on one side and it is all wrapped tightly from top to bottom.  When I picked her up from school today all of her classmates had signed it.  I am sure she had a tale to tell them today!  She has such great friends to help her get through this.

We are feeling so guilty that we weren't able to keep her safe and we keep trying to think of how this could have happened.  We know that she most likely has more brittle bones than most because she is non-ambulatory but we hate that this has happened to her.  She was finally feeling healthy and just finished her latest round of antibiotics for a double pneumonia two days before, she has had such a rough winter health wise. I hope that she heals quickly and my girl never has to go through something like this again. :(

Easter 2014

We had a pretty quiet Easter this year.  My parents were away and Sophie had pneumonia so we kind of laid low around home.  We had an egg hunt in the morning which is always a hit around here. Later we went for brunch with my niece and my sister.  The food was great and we were all stuffed full by the time we were done.

It was a beautiful sunny day and I was able to get the kids corralled long enough for a few photos!

Sophie's new transport chair

Sophie has her new Rodeo!  We were so excited for it to arrive, I was super impatient and was so happy when we received the call that it was in.  After some minor adjustments for her size we had it home.  Sophie has been using it now for just over 2 weeks and it has been working really well.

Sophie seems very comfortable in it, sometimes too comfy.  She has quickly found a way she likes to sit in it, one leg up in a funny yoga pose with her knee sticking out the side.  She does this each time she is in it, always the right leg up.

The harness/seatbelt system and special headrest add-on supports her head and torso well and the rigid seat with contouring we added has helped immensely to hold her in the chair properly.  Considering she had never been able to try this chair out before we ordered it, it functions very well.

We added a rain/sun canopy and a medical basket/tray for underneath for her feeding pump.  I still have to find a caribaner to hang the feeding bag from but otherwise we are good to go.  It rolls really nicely up into the back of the van so I haven't had to figure out how to collapse yet, but apparently it is fairly easy.  We chose a nice dark burgundy for the colour of the chair and I love it.

I hope this will provide her with many years of comfy touring on our many adventures.