Catching a wave

Not talking about surfing here :)  Sophie had an EEG today.  Her neurologists are keen on finding out if Sophie is having more seizures than we think.  Both of Sophie's vision specialists think that some of the eye movements Sophie has could be seizures, so the EEG will tell us a snapshot of what Sophie's brain is doing.  Unfortunately EEG's are just that, a snapshot of what is happening for that 20 minutes and nothing more.  But it can be helpful to at least see a baseline of background activity.  Sophie hasn't had an EEG since one of her very bad status seizures almost 2 years ago, so it was definitely time to have one done.

This adorable little cupcake is Sophie during her first EEG, well the first that I was at anyway.  I assume she had some during her first week of life before I met her, but I don't really know for sure.  Sophie had still not been home at this point, she was about 2 1/2 months old here.  That was also the day she got her g-tube put in.  The room we were in that day was right next door to where we were today and it brought back alot of memories from almost 6 years ago.  This photo of her has always been one of my absolute favourites and I don't even know why.  I think it just summed up alot of what we/she was going through at that time in one photograph and it was comforting to have it to remember by.

And here is my big girl today.  She was totally happy during the EEG but she was also very Sophie.  She wanted to see everything the technician was doing and unfortunately all the work was on top of her head so Sophie was wiggling to see.  Alot.  It took a very long time and lots of distraction by my singing to her but she finally got them all on in the right place and got her head wrapped to try to keep them in place.  I jokingly asked the tech if Sophie was the most difficult patient she has ever had to put them on and she said "Well......yes, I would say she was the most difficult ever."  She said it in a super sweet way and to be honest I wasn't completely surprised by the answer, my little monkey can be a handful. 

Sophie has very thick hair now and it was hard to keep it all separated while she moved around.  It is hard to tell in the photos but the probes are all over her entire head, not just at the front.

Sophie was a star during the EEG and sat on my lap quite happily, it was funny as she watched the technician like a hawk the whole time.  My girl doesn't like to miss a thing.  We should find out next week what the EEG showed.