Sunday, October 17, 2010

Closing Time

Lucas and I headed up to my MIL's cottage this weekend to help her close it up for the winter.  Not my favourite trip only because it means we have to wait six months for another visit there!  We were really spoiled this year and made it to the cottage alot.  We had one of our nurses from home come up for 2 trips, and we had 2 new night nurses from the community close to the cottage come for 2 of our trips.  They were super nice and we are hoping that we will be able to have them help at night there again next year.  We are very dependant on night nursing for Sophie.  Especially when we are away on holiday in a small cottage.  If I stay up all night with her then it is hard for me to get any sleep in the morning because of the noise.  So we were very lucky that we were able to get so many trips - one of them for 10 days! 
Sophie is tube fed and she eats through the night because she can't consume enough calories through the day and also gets many of her meds in the night.  She usually needs chest physio in the night and we never leave her alone because of her seizures. Sophie often goes into status epilepticus which means she has seizures that are long and don't stop without intervention.  They are very dangerous seizures which can be fatal if not stopped or at the very least can cause more brain injury.  Her longest seizure so far was almost 2 hours, after having 3 kinds of rescue meds.  So she has to be watched and cared for all night.
Sophie and Lucas just love the cottage, as do we, and it was a great season this year.  So many sunny, warm days. 
While we were at the cottage this weekend we went to a farmer's market and found some pumpkins and gourds.  They have the neatest coloured pumpkins, I especially like the blue/grey ones.  Lucas was in a very happy mood so even though he ducked out of alot of photos I managed to get a few.






We followed these paw prints up the beach for quite a while.  It is hard to tell here but it was the size of my palm.  We still don't know if it was a bear print or just a big dog, but man it was big.  We did have a bear at our cottage this year and last, so you never know.

Sophie was so happy to have us home, she has been smiling non stop.  Lucas had a fun time and I enjoy being able to spend time with him on special trips like this one.  We try to keep it equal, but Sophie takes alot of our attention.  It's just the way it is.

Now we can look forward to Hallowe'en and all the fun that brings!

1 comment:

  1. How special that you and Lucas were able to head out together for this trip. He looks like he is really enjoying himself! Lovely photos again, I love the one with the buckets, very colourful...not sure I'd follow possible bear tracks though. ;)

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